Who's
behind
Freedom
Clearinghouse?
What you need to know
Websites to use to get information to use when you meet with your State Medicaid Director.
http://research.aarp.org/health/d16550_states.html
At this site, you can download "Across the States 1998: Profiles of Long-Term
Care Systems, Third Edition." It's a 253-page chartbook of statistics
on long-term care systems for each state -- takes about 15 minutes to
download. You can find out how your state apportions money and "beds"
for long-term care at home and in institutions -- excluding "mental health"
institutions. (See the next in this list for those stats.) You'll also
get comparisons of states, side by side.
http://www.nasmhpd.org/nri/tbl_menu.htm
The National Association of State Mental Health Program Directors' NASMHPD
Research Institute, Inc. maintains an online database of information about
state mental health agencies. You can look up the "Number of Clients of
SMHA-Operated & Funded 24-hour Hospital Care Services," the "Number of
Clients of SMHA-Operated &Funded 24-hour Residential Care Services" and
the "Number of Clients of SMHA-Operated & Funded 24-hour Ambulatory Care
Services" for your state. The first two are lock-ups. The third is a type
of home care.
http://www.hcfa.gov/medicaid/scontact.htm
Gives lists of state Medicaid officials. Check here for information on
your state official; then call the number listed to make sure the information
is up-to-date.
http://www.os.dhhs.gov/progorg/ocr/regmail.html
Gives the HHS Office of Civil Rights info for your region (on Sheet 1E
in this Kit). That's where you can send Title II complaints. (Translation:
a Title II complaint is what you make if your state refuses to comply
with Olmstead v. L.C. & E.W.) Update:
List of OCR regional Olmstead contacts.
http://www.medicare.gov/Nhcompare/Home.asp
This is the HCFA Nursing Home Database, with information about nursing
homes from their last state inspection. You can search by zipcode or by
state. Use this to find nursing homes that have bad records --then use
the site below to get the phone number to call your state and get the
actual report.
http://www.medicare.gov/Contacts/[...(too
long to copy)...]
Lists phone numbers for the Long-Term Care Ombudsmen and State Survey
Agencies (the state agency which conducts site inspections for nursing
homes and issues inspection reports.) Your own state will probably have
a site showing nursing home inspection reports. This is ammunition --
your proof that no one is safe in institutions.
http://www.hcfa.gov/medicaid/olmstead/olmshome.htm
HCFA's
Olmstead Site. They've formed a workgroup composed of elements
from HHS, OCR and HCFA to address ongoing issues and questions of Olmstead
implementation and the ADA, to whom States and stakeholders can submit
questions and recommendations. This site also has links to Donna Shalala's
letter and the other policy letters to medicaid directors.
Freedom Clearinghouse is a project of
Free Hand Press,
publisher of Mouth
magazine.
Website developed by Cliffwood
Organic Works.
Website hosted by DIMENET.
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