Who's
behind
Freedom
Clearinghouse?
My staff are having consumers who are at risk of being institutionalized
due to the change in the October 1, 2002 Spenddown policy contact Pam
Betts, at P&A, at 1-800-392-8667, per Tim Azingers memo from last
week. Apparently P&A is looking for a test case under Olmstead and
this could solve our class action problem. If P&A fails to follow
through I have a name of an attorney who will assist with a lawsuit against
the State. Also, DCAI staff are continuing to encourage consumers
who will be losing spenddown to call, write, fax and e-mail the Governor's
office once a week. We have also discovered that local Legislators
will contact the Governor's office on our behalf if enough consumers explain
their situation. Therefore, we are informing consumers that
will benefit themselves to advocate with the Governor's office and the
local State Representative and State Senator.
If you would like more information on Olmstead, I would suggest visiting
www.freedomclearinghouse.org.
Click on the Missouri link. Also a great informative site about attendant
care is www.stevegoldada.com.
He has some excellent links to statistics regarding nursing homes, home
health care and personal assistance services.
No new news from the Governor's office except that they are exceptionally
busy trying to explain what they have done to all the consumers who have
contacted their office. It's not difficult to keep consumers motivated
about this issue. It seems that the consumers are motivating us as much
as anything.
Mark Stone
Executive Director
Services for Independent Living
1301 Vandiver Drive, Suite Q
Columbia, MO 65202
(573) 874-1646
TTY: (573) 874-4121
FAX: (573) 874-3564
Email: sil@computerland.net
Freedom Clearinghouse is a project of
Free Hand Press, publisher of Mouth magazine.
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